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Workshops were presented in French to a absolute of 17 participants. Characteristics of the participants are presented in Table 3. Fifteen participants (88%) were parents, of which 11 (65%) were mothers. Four accouchement abounding the workshops (3 patients and 1 sibling) of which 2 were too adolescent to acknowledgment the questionnaire. Two participants abounding added than one workshop.



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On a absolute of 45, 13 workshops (29%) were delivered and 32 (71%) were annulled (Table 4). Over the 12-month accomplishing aeon (March 2018 to March 2019), 7 of the workshops delivered (69%) were captivated with abandoned the facilitator, after the chef (Table 4).

To appraise branch absorption and barriers to participation, we surveyed the families enrolled in the VIE abstraction (Table 5). Twenty-six families out of 31 answered the acknowledgment survey: one ancestors could not be accomplished and 4 others abandoned out of the VIE abstraction afore the analysis was conducted. At the time of the survey, patients’ beggarly time back analysis was 8 months (range: 1 to 14 months) (Table 5). While the diagnoses were not collected, the citizenry accepted in the Division of Hematology-Oncology is awful amalgamate (Table 1). Because of low accord at the workshops, abstracts from the ascertainment annual was not collected.



SD: Standard deviation.

This area capacity the perceptions and opinions acquired from the families and the facilitator. Abstracts were calm application the questionnaires, facilitator action letters and survey. Results are presented according to anniversary basic of the action evaluation. Anniversary qualitative articulation could accept been included beneath added than one theme.



Three capacity were articular for the application component: 1) action description; 2) appulse of recipes and; 3) availability of families. Workshops were acknowledgment application bank posters in cardinal locations in the inpatient and outpatient clinics of the Division of Hematology-Oncology. Seventy-three percent (73%) of the families surveyed were acquainted of the workshops (Table 6). The facilitator visited the families enrolled in the VIE abstraction to advance the branch of the week. Families accessory the accepted areas were additionally approached. The absolute cardinal of families approached during the advance tours was not documented. The facilitator contacted 16 of the 17 branch participants during advance tours. Flyers were additionally handed to the nurses in the outpatient dispensary to animate advance of the workshops to families. Nurses and analytic dieticians were additionally notified anniversary week.

Three subthemes emerged from the ability component: 1) appulse of low participation; 2) ambition citizenry and; 3) characteristics of patients. The ability of the citizenry was low as abandoned 1 to 2 participants abounding anniversary branch (Table 3). The facilitator appear that this acquired delivery-related difficulties and afflicted the achievability for participants to interact. Language had a accessory appulse on the branch reach: overall, abandoned 4 parents were clumsy to participate to a branch because they did not accept or allege French.

Subthemes accompanying to the ambition citizenry and patients’ characteristics that either facilitated or challenged accord were declared application ascertainment addendum and survey. Abounding surveyed parents appear they were affable at home and that diet was a antecedence for them. Some mothers surveyed had able affable (n = 3) or a dietician (n = 1) education. This was not a barrier for accord but did admission participants’ interests:

(Survey) One mother appear preferring the treatment-related capacity because she had able affable training.

Some parents mentioned that actuality at the hospital with their apron would admonition them appear an activity. Added parents mentioned that the workshops were added accordant for their spouse, suggesting that the ability is not agnate aural a aforementioned family:

(Survey) I am not the one who cooks at home.

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(Survey) My apron is added present than me at the hospital.

Characteristics of patients additionally afflicted parents’ accord and interests. The best declared characteristics were the child’s accepted bloom action accompanying to his treatment, allergies or lactose intolerance, as able-bodied as his pickiness. These altitude were mentioned as barriers for compound tasting or for branch participation.

Three sub-themes emerged and segments were extracted about abandoned from the action report: 1) adaptations of the agreeable and animation; 2) description of the key letters that were not delivered and; 3) acumen for not carrying the key messages.

In 7 of the 13 workshops, all the comestible letters were covered (54%) (Table 4). Letters accompanying to the blockage of foodborne infections were the best omitted. The affidavit for not carrying the key letters included the unreceptiveness of participants, blank from the facilitator, actor anon abrogation the action and difficulties assuming the recipe.

The adjustment subtheme refers to the strategies acclimated by the facilitator to acclimate the letters and action for the audience. For example, she gave abandoned admonition to booty into annual participant’s comments and complex the accouchement in the affable demonstration. This did not adapt the agreeable of the letters delivered. Moreover, during one workshop, the agreeable was acclimatized in adjustment to abode the parent’s questions and knowledge.

Five subthemes accept emerged as contextual: 1) area and material; 2) medical or comestible characteristics of the patient; 3) Acumen and time management; 4) affectionate appearance appropriate abroad and; 5) characteristics of the ambition population.

Difficulties accompanying to the concrete location, accessories and noises during the comestible demonstrations were appear as challenges by the facilitator. During the promotional tour, one mother and one assistant appear that it would be added acceptable if the workshops would booty abode on the aforementioned attic as the inpatient Division of Hematology-Oncology, rather than on the attic the action was planned (2 floors below):

(Field notes) One mother mentioned that she anticipation this affectionate of action was actual absorbing and that she capital to participate. However, she could not appear because her adolescent was immunocompromised and she was afraid to leave her alone. She declared that she would participate if the action would booty abode on the aforementioned attic as her child’s room.

Difficulties accompanying to acumen and time administration were frequently appear by families. During the advance tours, abounding parents declared that they lived far abroad from the hospital and would not appear abandoned to appear a workshop. In the outpatient clinic, parents appear that, back visiting the hospital, they were about active with accessories in the morning and capital to leave as anon as possible. One ancestor mentioned:

(Field notes) [Parents] consistently appetite to leave afore hitting traffic. They corroborated that this is the arch barrier to appear a branch because they are contrarily absorbed [in accommodating to a workshop].

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Lack of time was additionally a alternate agency of the ambition population. Forty-two percent (42%, n = 11) of the families surveyed mentioned that actuality too active prevented them to participate (Table 6).

Availability and interests of parents were awful afflicted by patients’ medical action (Table 6). In the survey, 77% (n = 20) of parents declared that assured a appointment from a doctor or a bloom able at the time of the branch would be a barrier for participation. A appointed analysis or analysis would additionally be a barrier for 85% (n = 22). For some parents, comestible difficulties encountered by the adolescent were a action to attend, while for others, their administration was rather perceived as time-consuming and as a barrier:

(Field note) A mother declared that she is, in essence, interested, but at the moment, she believes she was actuality added accessible by absorption on her child’s astute comestible challenges.

The charge for the ancestor to be at his child’s bedside was appear in the acknowledgment analysis as a accord barrier by 58% of families (n = 15) (Table 6), behindhand of the child’s age. The appearance of both parents was appear as a facilitator for branch participation. One mother stated:

(Survey) We were advantageous to be both present [at the hospital] that day: it fabricated it easier to appear the workshop. Back abandoned one ancestor comes [to the hospital] with the child, it is added complicated to appear a branch [for him/her].

The contextual factors accent the barriers and affidavit that complicate parents’ admission to the workshops and helped acknowledgment the accepted low attendance.

Four capacity accept emerged accompanying to allegiance of the accomplishing process: 1) branch delivery; 2) recipes; 3) abuse of the accountability accompanying to accord and; 4) appulse of low participation. The workshops had a beggarly continuance of 51 min (± 13 min, range: 40–90), which was beneath than the planned 60 min (Table 4). The absence of the chef in 69% of the delivered workshops led to a beneath beggarly continuance (46 ± 4 min, range: 40–50).

The facilitator declared some difficulties accompanying to the bulletin commitment in the absence of the chef. They principally referred to analogous the commitment of comestible letters with the compound demonstration. Added difficulties appear were a beneath activating or aqueous delivery, blank of agreeable and challenges in free the best moment to acknowledgment participants’ questions.

Sixty-nine percent of the surveyed parents (69%, n = 18) were absorbed in tasting the recipes (Table 6). One actor mentioned that the compound abiding her to appear to the workshop: one mother mentioned the one-pot mac’n’cheese compound as the capital acumen acknowledgment her participation. Some parents mentioned the pickiness of their adolescent as a barrier to aftertaste new recipes. However, while the majority of parents declared that tasting was enjoyable, it was not the arch allurement for participation:

(Survey) [Mother] I would accept appear alike admitting there was no recipe. However, it was ambrosial to me.

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It was capital for the analysis aggregation to abbreviate the accountability associated with participation. On occasions, the facilitator acclimatized the time and agreeable in adjustment to board participants’ schedule.

The dosage accustomed refers to the acknowledgment and perceived account of the intervention. In the questionnaires, 71% of participants (12/17) agreed they had acquired ability accompanying to every key bulletin (Table 7). Abandoned 13% (2/17) declared they had acquired ability for beneath than bisected of the key messages. All participants (n = 17) would acclaim the workshops to added parents. For this component, the subthemes aloft from the qualitative abstracts were: 1) commitment mode; 2) absorption and receptivity; 3) logistical and authoritative context; 4) above-mentioned knowledge; 5) utility/non-utility of the branch accompanying to patient’s action and; 6) branch themes.

When asked about their admired commitment format, best parents surveyed adopted abbreviate web-based video capsules (n = 18, 69%, Table 6) in allegory with flyers only, contiguous or videoconference. Families appear that videos were added ambrosial than accounting affidavit because they are beneath time arresting and they can be watched whenever needed.

Data acquired during promotional tours or with the analysis showed that parents were absorbed in nutrition: abandoned one ancestor declared that advantageous bistro was not his antecedence (Table 6). Besides, for 12 of the 13 workshops, the facilitator rated the participants’ akin of absorption anatomy aerial to actual aerial (Table 4). In the acknowledgment survey, abounding families bidding that workshops could be a nice aberration while actuality at the hospital:

(Survey) This affectionate of action is actual accordant to me because we are generally attractive for article to do in the hospital.

In general, there was absorption for the activity, but the logistical barriers (e.g. accepting to break with the adolescent or active far from the hospital) bound the acknowledgment to the intervention. No arrangement in agreement of the day (week or week-end) and time (morning or afternoon) of commitment or in the branch affair was articular in accord with attendance. Also, families’ preferences were actual assorted back asked about what time of the day would be ideal to appear a workshop. However, parents declared that it was easier to appear back the adolescent was ailing rather than back he was an outpatient.

The perceived account of the workshops was afflicted by parents’ above-mentioned comestible and comestible knowledge. This was mainly accompanying to foodborne affliction blockage as 58% of participants appear not actuality absorbed by this specific agreeable (Table 6). These parents declared they had accustomed absolute instructions by the nursing agents and were already applying the attempt at home. Conversely, added parents begin that reminders of the rules for blockage of foodborne infections were helpful.

The perceived account was afflicted absolutely or abnormally by the child’s medical condition. Some parents appear that their adolescent could eat everything, so they did not apperceive the workshops as useful. Added mentioned that their adolescent was captious and that this was a barrier to attend. Parents’ absorption appear the action was additionally generally accompanying to analysis ancillary effects:

(Field notes) One mother declared that, at the moment, her adolescent was accomplishing able-bodied and that she will accede [the workshops] if the adolescent loses weight.

(Survey) The account of the workshops is accompanying to the analysis ancillary furnishings and the child’s bistro habits.

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Thus, 62% of the parents surveyed (n = 16/26, Table 6) appear that the branch affair was not accompanying to the child’s accepted condition, which was a barrier for participation. The analysis showed that “Changes in aftertaste during blight therapy”, “Meal fortification” and “Planning quick and bread-and-butter meals” were the best advantageous workshops for 38, 31 and 27% of the parents, appropriately (Table 6). Parents appear that the atomic advantageous workshops for them were “Adapting diet to eating-related ancillary furnishings of treatments” (31%), “Mediterranean diet and health” (23%) and “Planning quick and bread-and-butter meals” (19%) (Table 6). Among the families who declared that the atomic advantageous affair was “Adapting diet to eating-related ancillary furnishings of treatments”, 25% additionally appear that their adolescent did not ache from these ancillary effects. One mother defined that alike admitting she did not acquisition this affair useful, it could be for added parents.

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